International Epilepsy Day
International Epilepsy Day, observed annually on February 12, is an initiative led by the International Bureau of Epilepsy (IBE) and the International League Against Epilepsy (ILAE). In 2024, the theme, “Milestones on my Epilepsy Journey,” takes center stage, highlighting the remarkable achievements of individuals navigating the challenges posed by epilepsy. This powerful theme aims to encourage people to openly share their personal journeys, fostering a supportive environment that breaks the silence surrounding epilepsy.
The focus on celebrating milestones is particularly crucial when dealing with paediatric epilepsy, where the impact extends beyond the affected child, to the entire family. The journey becomes a roller coaster ride, delicately balancing between under and overprotection of the child. For families, this theme signifies not just the diagnostic and treatment aspects but also encompasses the social, developmental, psychological, and emotional dimensions of dealing with epilepsy.
In the context of paediatric epilepsy, inclusivity is paramount. The theme underscores the importance of viewing each family as a cohesive unit with the child at its core. This ecosystem includes teachers, caregivers, friends, and the broader community. It calls for collective encouragement, appreciation, and compassionate engagement, recognizing the multifaceted challenges faced by families. The comprehensive medical team, too, is urged to extend their focus beyond mere diagnosis and medication, embracing a holistic approach that considers the broader well-being of those affected.
This collaborative effort seeks to create a supportive network, where families and individuals grappling with epilepsy feel secure and find strength to confront and overcome the challenges they encounter. Together, we can hold hands, fostering an environment of compassion and dignity, ensuring that each epilepsy warrior receives the support needed to triumph over adversity.